Sad to say, with the operation to remove the tumour hopefully happening within the next couple of weeks, I suffered another (my second) epileptic fit yesterday, again whilst asleep before waking.

Maybe I'd got too complacent after 3 months of feeling fine waiting for an op that's only a short time away and wasn't treating myself right... who knows? All I can say is that where my calves cramped up really badly and I bit my tongue I'm still aching, and yesterday I just felt knackered all day getting over it!

Hopefully it will push me up the operation list a bit (though I'm not sure as I think I'm top of the non-malignant list already) and in the meantime I need to see the GP about my sick note anyway so will see if he wants to up or add to my meds until the operation.

Hope everyone else on here is doing OK! I'll try to look after myself a bit better

I'm really sorry to hear you had another epileptic fit. The symptoms you mention sound familiar - I've had a friend who suffered from epileptic fits.

Leading a regular life with sufficient food and sleep at fixed times should help preventing more of them. Hopefully your operation can be pushed forward. Here in Holland sometimes when people have to wait too long for an operation they can go to Belgium or Germany to get the operation more quickly - any such options under the NHS?

Take care,
DJ

Thanks, all, your support is appreciated.

Feeling a lot better now; I think the fact I had 3 months symptom free may have made me a bit complacent as to lifestyle! I believe the NHS sometimes send people abroad who are on *very* long waiting lists but since I'm due within weeks I should think they'll just go ahead as planned, possibly upping my dose of anti-epileptic drugs in the meantime (I'm waiting for the specialist nurse to get back to me on that).

Good to hear you're feeling better! I reckon that now it's just a question of sitting it out, if possible with higher doses of medication, until you're due for operation and adopting a moderate lifestyle until then. Hopefully you can catch up later... 

Same here. Best wishes and glad you are feeling better.

Best wishes from me too!

Best of luck Voltaire, glad you're doing better!

Quoting dee1959jay:

Quote:
Good to hear you're feeling better! I reckon that now it's just a question of sitting it out, if possible with higher doses of medication, until you're due for operation and adopting a moderate lifestyle until then. Hopefully you can catch up later... 

My GP has upped my dose of anti-epileptics now and my wife is making sure I'm awake before she goes to work so hopefully that will help stop any repeat of suffering from a fit before the operation.

Thanks to all for your best wishes